Elissa J. Levy (EJ) was diagnosed with secondary progressive multiple sclerosis in 2002, when she was 33.
Since her diagnosis, EJ has devoted her time and energy to raising money and awareness to find a cure for the disease.
In February of 2007, she founded MS Hope for a Cure, a 501(c)3 charitable organization dedicated to raising funds that can make the biggest difference in the shortest amount of time in the fight against Multiple Sclerosis. As president of MS Hope for a Cure, EJ leads the fundraising efforts and since its inception the organization has raised over 8 million dollars.
EJ strongly believes that spreading awareness is as important as raising money. She has been interviewed on several news programs including a 2010 appearance on the Today Show with her doctor where she spoke about the breakthrough drug Ampyra. EJ is considered a super-responder to Ampyra as it has allowed her to throw away her cane, and has not needed to use a wheelchair since she began taking the experimental form of the drug. She is proud that she was able to testify before the FDA Advisory Panel in 2009 to help get this drug approved.
EJ works closely with the National MS Society and in 2012 was inducted into the NMSS’s Circle of Distinction. She was a member of the prestigious NOW Campaign Cabinet, which consisted of six people across the country who dedicated their time to help raise 250 million dollars for research. EJ also serves on the Oversight Committee for the CGD Center for MS at Mount Sinai and is a member of the iConquerMS Research Committee.
EJ holds a BA from the University of Vermont and an MA in Education from New York University. In May 2013, EJ’s dream came true when she became a single mom to a beautiful baby girl, Matilda. In 2016, EJ and Matilda left Manhattan and moved to South Burlington, VT. They love their new lifestyle, but enjoy going back to New York City often to visit friends and family.